“Evidence building for EDS patients with CCI needs to start somewhere”

ITV News this week covered the story of EDS UK member Melanie Hartshorn after she had surgery for the complication cranio-cervical instability (CCI)  in Barcelona. Melanie had to fundraise for the surgery after being denied it by the NHS.

EDS UK’s Kay Julier has been speaking to ITV News about what needs to be done to help EDS patients with CCI in collaboration with the NHS. Click here to watch this news piece.

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