NICE guidelines for chronic fatigue syndrome/ME to be updated

Some types of EDS are often misdiagnosed as chronic fatigue syndrome/myalgic encephalomyelitis (ME). EDS UK recently submitted comments on the NICE guidelines for chronic fatigue syndrome/ME as NICE had decided there was no new evidence to warrant an update (the guidelines were written in 2007). As a result of the new information from EDS UK and other patient organisations, NICE has decided to update the guidelines and modify their scope, which is great news.

We don’t know yet what will be in the new guidelines but we’ll provide an update when we know more.

More News Articles

Charity news, patient stories, events, reearch & Ehlers-Danlos in the press