To help raise awareness of the Ehlers-Danlos syndromes and hypermobility spectrum disorders this May, help us to highlight how long it takes to get a diagnosis. Share your #timetodiagnosis image!

For many people the journey to a diagnosis of EDS or HSD, has been a long and challenging road. Poor awareness of the condition amongst medical professionals, means that it can go undiagnosed for many years, with patients often being misdiagnosed with other conditions.

How long did it take to receive your diagnosis, from the first appointment with your GP, until an official diagnosis? Tell us through a video or upload a photo (the more creative the better!).

Please refrain from ‘party tricks’ or extending your joints more than necessary.

You can upload your photos here:

Share on social media and help us spread the word.

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