Support Groups

Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.

We have over 50 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.

We are very grateful for a Big Lottery Fund grant through the National Lottery which helps pay for the meetings, training of our volunteers and much more.

South London

My name is Cate and I am really pleased to be a volunteer Area Coordinator for South London –

I am diagnosed with hypermobile EDS together with other comorbidities.
I used to have a very active life and I have enjoyed working for multinational companies in Marketing and Media.
A few years ago a flare up put an end to all this so I retrained as SEND Learning Assistant and I worked for the local secondary school and later I worked as a Key Worker with young adults.
My passion for knowledge and science led me to read several books on pain, neurology and how the brain works and expand my knowledge.
Volunteering with EDS UK gives me the opportunity to support others in their journey and doing it keeps my pain at bay.
I now also volunteer with my local primary school and with my local church.
Looking forward to continue this journey together.

Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group

Please note that Volunteer Area Coordinators may not get back to you immediately.

If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:

call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)

These services are for anyone who’s struggling. They won’t judge you.

They’re free, they’re anonymous, and they’re always open.

online eds uk support group meetings

Online meeting

Next date: October 6, 2021

(This meeting happens every 14 days)

Start: 6:00 pm

Finish: 7:00 pm

Zoom meeting link: Click here to join

Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.

Join Cate every other Wednesday evening for an evening chat group Please note these meetings will not run on the following dates: October 20th 2021 Between 6/12/2021 to 4/1/2022 included. Between 1/4/2022 to 22/4/2022 included. Between 22/6/2022 to 14/8/2022 included.

online eds uk support group meetings

Online meeting

Next date: October 1, 2021

(This meeting happens every 14 days)

Start: 12:00 pm

Finish: 1:00 pm

Zoom meeting link: Click here to join

Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.

Join Cate every other Friday for a coffee meet Please note these meetings will not run on the following dates: Between 6/12/2021 to 4/1/2022 included. Between 1/4/2022 to 22/4/2022 included. Between 22/6/2022 to 14/8/2022 included.

online eds uk support group meetings

Online meeting

Date: October 29, 2021

Start: 11:00 am

Finish: 12:30 pm

Zoom meeting link: Click here to join

Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.

South London Support Group Meeting with Cate

Date: November 13, 2021

Start: 1:00 pm

Finish: 3:00 pm

Venue: South Wimbledon Community Centre, 78 Victory Road, London, SW19 1HN

Additional info: South London Face to Face Support Group Meeting with Cate

Map:

More Support

Support groups, advice with work, help with benefits and more