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Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Chatteris
Vicki
I’m Vicki, it took me many years to get my diagnosis of Hypermobility Spectrum Disorder, with overlapping symptoms of hEDS. In retrospect I have been affected since birth, but only in adulthood have we been able to connect all the dots that helped everything ‘click’ into place.
I experience chronic pain and fatigue, however I still work full time as a graphic designer, and I am also a children’s book author and illustrator. I live with my husband and menagerie of pets. There’s nothing I enjoy more than being able to take my dogs out to spend quality time with them. I now need assistance with keeping them exercised, but my family are very supportive and we also have a regular dog walker, and I still get to enjoy short walks, and/or town trips with my dogs, so we can enjoy things at a slower pace together.
I have now been equipped with some walking aids, which have enabled me to regain some independence.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
There are currently no meetings in the diary for this support group. If you have selected to receive notifications on this support group we will notify you when one is organised. You can update what Support Groups you are notified about in your member profile.