SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Crewe
Anna
My name is Anna, and I am your Area Co-ordinator for Crewe!
I want to bring together our Crewe community with regular meetings, giving us all a chance to connect both F2F and online. I look forward to seeing our community grow!
A bit about me, I work in the medical industry, often on rare disease projects – despite this, and having been diagnosed with hypermobility at 21, I did not know EDS existed until this year when lots of things and my diagnosis fell into place!
I have a Springer spaniel called Erin, love countryside walks, interior design, crime dramas and I am a hopeless coffee addict and chocolate fanatic.
Looking forward to connecting soon!
Please do join your North West members Facebook group for closed members here
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Online meeting
Date: 19th September 2026
Start: 11:00 am
Finish: 12:00 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.
Online support meeting with Anna. Everyone welcome!