SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Leicestershire and Rutland
Sarah Steele
Hi, I’m Sarah, having spent a lot of time knowing something wasn’t quite normal with my own body I consulted Dr Google and found EDS. I was becoming more and more sure this might be what I had so attended a support group. I was sitting together with people with similar problems and familiar stories, this was a huge relief, I wasn’t imagining it, I wasn’t being a diva, it was real. This gave me the confidence to pursue a diagnosis and aged 47 I “came out”, but the journey is not over… I know first hand the benefits of a support group so I decided to start one for the local area as there wasn’t one. Now I don’t have to drive so far to get to a meeting and hopefully you won’t have to either! Come and meet with like bodied folk in an open and relaxed atmosphere at my local village hall, just 10-15 mins from Harborough, Corby and Uppingham. Feel free to wriggle, bring a cushion or a blanket. You are welcome to bring a carer, partner etc. too.
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
There are currently no meetings in the diary for this support group. If you have selected to receive notifications on this support group we will notify you when one is organised. You can update what Support Groups you are notified about in your member profile.