SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Woking
Joo
Hello, my name is Joo. I am excited to be the area co-ordinator for Woking.
Like many of us my road to diagnosis was long and difficult as my symptoms were varied and debilitating. After years of struggling I was finally diagnosed in 2022 by Dr Alan Hakim with Hypermobile Ehlers Danlos and Postural Orthostatic Tachycardia Syndrome.
Getting a diagnosis was so validating and cathartic, it led me down an unexpected path of leaving the corporate world behind to train as a Health Coach with the College of Naturopathic Medicine. Armed with a diagnosis and now the education, I can better control my symptoms and able to live a much fuller life.
I am incredibly passionate about helping others improve their wellbeing and hope to be of service to the EDS community long term especially as some of my children have inherited my genes.
I am looking forward to meeting you and creating a lovely community of Zebras in Woking.
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Date: 5th September 2026
Start: 10:00 am
Finish: 12:00 pm
Venue: The Welcome Church, 1-5 Church St W, Woking GU21 6DJ
Additional info: TMJ and Hypermobility Anna van Piggelen, Osteopath and Orofacial Myofunctional Therapist Join us for a thoughtful and practical conversation about TMJ, jaw pain and hypermobility. Anna has over 15 years of experience in osteopathy, with a specialist interest in head, neck and jaw pain, and particular experience supporting people with EDS and hypermobility. What to expect: TMJ issues and their relationship with hypermobility Understanding jaw pain, tension and dysfunction Anna’s clinical experience and insights Your questions, experiences and reflections
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