SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Elders Online Group
Caz
Hi, I am Caron!
I am one of the volunteer coordinators for the EDS UK Elders’ support group. I was diagnosed in June 2000 after spending nine months on bed rest after I sprained my sacroilliac joint and I haven’t been able to walk unaided since.
However this hasn’t stopped me enjoying my life! For my distraction techniques I craft – I make anything from bags to cards; my craftroom is my happy place. Every week I learned something new about EDS. But there is so much we don’t know about growing old with EDS and all the different comorbidities.
I want to support you on our journey through midlife and beyond.
EDS UK members can join the Elders group on Facebook by clicking here
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Online meeting
Date: 10th September 2026
Start: 7:30 pm
Finish: 9:00 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.
Elders Virtual Support Group Meeting with Caz. Everyone welcome
Online meeting
Date: 8th October 2026
Start: 1:30 pm
Finish: 3:00 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.
Elders Virtual Support Group Meeting with Caz. Everyone welcome
Online meeting
Date: 12th November 2026
Start: 7:30 pm
Finish: 9:00 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.
Elders Virtual Support Group Meeting with Caz. Everyone welcome
Online meeting
Date: 10th December 2026
Start: 1:30 pm
Finish: 3:00 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.