SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Guildford
Millie
Hi everyone, my name is Millie and I have been diagnosed with EDS, PoTS, Gastroparesis, intestinal dysfunction and the list goes on. I love dogs, dancing and discovering the world around me.
After a long gruelling battle with countless health problems, I became fixated on the idea of helping others and so in August 2022, I began my role as an Area-Coordinator. I have since held regular support groups, seasonal socials, offer 1:1 advice/support and have accumulated a wonderful group of people of which I am very proud to lead. I do all of this with the goal of creating a safe space for people to open up about the harsh realities of EDS, inspire friendships, giving hope to those along their journey and ultimately support people through the highs, lows and all the in-between. It would be an honour to meet you and introduce you to our little community which is filled with kindness, support and love.
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Date: 5th September 2026
Start: 10:00 am
Finish: 12:00 pm
Venue: The Welcome Church, 1-5 Church St W, Woking GU21 6DJ
Additional info: TMJ and Hypermobility Anna van Piggelen, Osteopath and Orofacial Myofunctional Therapist Join us for a thoughtful and practical conversation about TMJ, jaw pain and hypermobility. Anna has over 15 years of experience in osteopathy, with a specialist interest in head, neck and jaw pain, and particular experience supporting people with EDS and hypermobility. What to expect: TMJ issues and their relationship with hypermobility Understanding jaw pain, tension and dysfunction Anna’s clinical experience and insights Your questions, experiences and reflections
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