SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Borehamwood (and Watford)
Ori
Hi, I’m Ori and I live in Borehamwood, Hertfordshire.
I was diagnosed with hEDS in 2020 after many years of varying diagnosis and appointments. I know all about what daily coping with EDS symptoms feels like.
I love volunteering and helping people. I am also passionate about Yoga, science, music and NBA basketball.
I have a Bachelor’s degree in Mechanical Engineering and worked as a Commercial Natural Gas Engineer for 12 years. I also used to practice a lot of Yoga. I had to stop both due to EDS-related chronic pain and fatigue.
I really understand the value that can be gained by bringing groups of people together to share, help and support each other. I look forward to welcoming you and to help shape our EDS and HSD community in Borehamwood
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Date: 27th September 2026
Start: 2:00 pm
Finish: 3:30 am
Venue: Allum Hall & Manor House, 2 Allum Ln, Elstree, Borehamwood WD6 3PJ
Additional info: In-Person Support group meeting with Ori. Everyone welcome! Refreshments provided, accessible venue with off street free parking available, 5 minutes walk from Borehamwood station and bus routes.
Map: