SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Huntingdon
Kiri
I’m Kiri and I’m really pleased to be your area co-ordinator for Huntingdon.
I was diagnosed with hypermobile Ehlers Danlos Syndrome after an 11 year journey of hip, wrist and shoulder injuries and surgeries. Later I realised other signs had been there from childhood but weren’t recognised at the time, which is what makes me very passionate about raising and spreading awareness.
I’m a dog Mum and qualified dog trainer/behaviourist, so dogs are a great love of mine, followed by books! Though I am still trying to find ways of doing things I love (something I’m sure a lot of us can relate to!) in a way that accommodates pain, injuries and flare ups.
I’m really looking forward to meeting you and hopefully creating a community in this area where we can support one another.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Date: 10th October 2026
Start: 11:30 am
Finish: 1:30 pm
Venue: Blue Diamond Garden Centre Restaurant, Wyton, PE28 2AA
Additional info: Support group meeting with Kiri. Accessible venue and refreshments provided. Everyone welcome
Map:
Date: 7th November 2026
Start: 11:30 am
Finish: 1:00 pm
Venue: Blue Diamond Garden Centre Restaurant, Wyton, PE28 2AA
Additional info: Support group meeting with Kiri. Accessible venue and refreshments provided. Everyone welcome
Map: