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Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Leeds
Emma
Hi, I’m Emma and I am delighted to be area coordinator for Leeds.
I was diagnosed with hEDS at age 24 after years of battling with symptoms and being ignored. It was gratifying to be able to understand my own body and begin my own healing journey. I have been able to uncover new ways to achieve the things that I wanted to without letting my hEDS symptoms hold me back.
I am a primary school teacher who loves to socialise with friends, visit the theatre for a musical or play and attend my choir. I am also an avid reader (particularly thriller books!) and enjoy diamond art painting.
I am looking forward to meeting and chatting with you all, whether it is face to face or virtually!
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Date: 22nd August 2026
Start: 1:00 pm
Finish: 3:30 pm
Venue: Brew Society, 26 Aire St, Leeds LS1 4HT
Additional info: Support group meeting with Emma for all members in and around the Leeds area. Partners/friends/family members welcome. All refreshments provided - accessible facilities.
Map: