SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Merseyside
Sarah O
“Hi, my name is Sarah Orme and I’m the new Area Co-Ordinator for Merseyside. I was diagnosed with hEDS in 2019 with my path to diagnosis being complicated due to other illnesses that never fully encompassed all of my symptoms. I’ve been happily married for 11 years and also have my three troublesome fur-baby cats (Charlie, Fred & George) to keep me on my toes.
I have a Masters Degree in Chemistry and worked as a drug discovery scientist for GlaxoSmithKline before my illnesses meant I was no longer able to work. I love all things crafty including sewing and baking and I’m always looking for something new to have a go at as I find that really helps with my mental health.
My own battle with EDS has given me an awareness of how disabilities affect people in different ways and I’m hoping to use my experience to help other zebras with all the problems EDS throws at us.
I’m always available for support or to answer any questions you may have. My email address is merseyside@volunteer.ehlers-danlos.org
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Online meeting
Date: 3rd September 2026
Start: 7:00 pm
Finish: 9:00 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.
Online support meeting with Sarah. Everyone welcome!
Online meeting
Date: 17th September 2026
Start: 7:00 pm
Finish: 9:00 pm
Zoom meeting link: Click here to join
Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.
Online support meeting with Sarah. Everyone welcome!
Date: 15th November 2026
Start: 11:00 am
Finish: 1:00 pm
Venue: The Brain Charity, Norton Street, L3 8LR
Additional info: Merseyside in-person Support Group meeting with Sarah. All welcome!
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