SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Portsmouth
Lola
Hiya I’m Lola, a proud farmer’s wife and mother to three amazing girls. Farmlife keeps me busy, but I wouldn’t have it any other way.
I’ve been diagnosed with Ehlers-Danlos Syndrome (EDS), Mast Cell Activation Syndrome (MCAS), and Autism, which each bring their own unique challenges, but I try to take them in stride.
I’m also an ambulatory wheelchair user due to EDS. My passions are art, writing and spending time with my animals, especially my dogs, Mazikine & Margo.
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group.
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Date: 16th September 2026
Start: 11:00 am
Finish: 1:00 pm
Venue: Springwood Community Centre, 110 Springwood Ave, Stakes, Waterlooville PO7 8BJ
Additional info: In-person ,eeting for Portsmouth/Fareham members with Lola. Refreshments provided. Feel free to bring a friend or family member with you. Everyone welcome!
Map: