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Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Betsi Cadwaladr (North Wales)
Tasha
Hi, I’m Tasha and I am a from a small village in North Wales.
I am the area coordinator for North Wales (Betsi Cadwaladr) and have been in the role for over 8 years.
I am currently a Social work Masters student in Liverpool John Moore’s University. I also hold an undergraduate degree and masters in Psychology, I have a deep knowledge of mental health services and treatments, and have applied this during my career and whilst working for EDSUK. I have many years experience working in Social services and this included working as a first contact officer in Adult social services where I would assess each person for the most appropriate support for example occupational therapy, physiotherapy, social work, and any other social care input. I have previously worked within the children’s social services team teaching parenting and home routines with children on a child in need/ CASP and child protection basis.
I have Hypermobile EDS, I was diagnosed at the age of 19 in 2007, I unfortunately went through many years of being disbelieved, for me being diagnosed answered so many questions for me. My goal is to help stop others experiencing not being believed, and help people get diagnosed earlier. Being a person with a disability has made me even more determined to reach my goals and help improve other peoples lives. I believe that anything is possible, and that with adaptations everyone can achieve what’s important to them.
In my role at EDSUK I run regular meetings for members so that they can access support and advice. I also do a lot of 1:1 support, as living in a rural area can make accessing meet ups difficult. During my role I have lectured to Rheumatologist teams, and spread awareness with GPs surgeries. I have also raised awareness of EDS with the general public, by being in many newspaper articles, and on the news sharing my story. If you live in North Wales or Cheshire and would like support please contact me on natashevansedsuk@gmail.com
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Sylwch efallai na fydd Cydlynwyr Ardal Gwirfoddol yn cysylltu â chi ar unwaith.
Os oes angen i chi siarad ar hyn o bryd, beth bynnag rydych chi’n mynd drwyddo, mae yna bobl y gallwch chi siarad â nhw ar unrhyw adeg. Gallwch:
ffoniwch y Samariaid ar 116 123 (ledled y DU)
testun SIOP i 85258 (ledled y DU)
ffoniwch C.A.L.L. ar 0800 132 737 (Cymru yn unig)
Mae’r gwasanaethau hyn ar gyfer unrhyw un sy’n ei chael hi’n anodd. Ni fyddant yn eich barnu.
Maen nhw am ddim, maen nhw’n ddienw, ac maen nhw bob amser ar agor.
There are currently no meetings in the diary for this support group. If you have selected to receive notifications on this support group we will notify you when one is organised. You can update what Support Groups you are notified about in your member profile.