Support Groups

Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.

We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.

We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.

Scotland 18-30 virtual support group meetings

18-30 group Jess

Contact group

Scotland 18-30 Coordinator – Jess

Hi! I’m Jess (she/her), I facilitate online Support Meetings for people aged 18-30 living with EDS and HSD in Scotland. I have hEDS (along with PoTS, MCAS, and other co-morbid conditions) so I know first-hand some of the challenges of living with EDS. Although we’re all affected differently by EDS and HSD, there’s so much we share that others can struggle to understand.

Whether it’s navigating our health journeys, relationships, careers or studies, managing symptoms or dealing with the medical system—it can feel overwhelming at times!

These meetings are a place to support and encourage one another through the trials but also to celebrate our wins, big and small. I know a “Support Meeting” can
sound intimidating, but it’s just a name for a meeting of like-bodied people to meet and connect. From sharing tips and tricks to just being with people who “get it”,
connecting with others living with EDS and HSD and the sense of understanding and community is invaluable and a good reminder that you’re not alone.
You can find the meeting dates and times listed below and also on Scotland’s closed regional Facebook page under the events section.

If you’d like to join a meeting but would like to talk or find out a bit more about it first, you can drop me an email: jmartin@volunteer.ehlers-danlos.org
Hope to see you there!

Jess

Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group

Please note that Volunteer Area Coordinators may not get back to you immediately.

If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:

call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)

These services are for anyone who’s struggling. They won’t judge you.

They’re free, they’re anonymous, and they’re always open.

Online meeting

Date: 6th September 2026

Start: 7:00 pm

Finish: 8:30 pm

Zoom meeting link: Click here to join

Additional info: Please ensure you read our online support group meeting policy and privacy policy before attending. The online support group policy is particularly important as it sets out guidelines for how the meeting will take place and things you should consider before attending an online support group.