SearchSupport Groups
Did you know...all our support groups are run by Area Coordinators who volunteer their time to organise meetings all over the country. Our Area Coordinators are from all walks of life including some who suffer with EDS, to those who care for someone with it. Without our volunteers, the support we provide to you would cease to exist, so we are incredibly grateful for the invaluable work they do.
We have over 100 groups online and face to face, with the aim to provide safe, friendly environments where members can meet others, listen to people’s stories and learn from each other. All of our support groups also have a closed regional Facebook group for members only.
We are very grateful to all of our funders who help pay for the meetings, training of our volunteers and much more.
Swansea Bay
Jeni
My name is Jeni and I am the area co-ordinator in Swansea. I was diagnosed with hEDS in 2023 after over 10 years of searching for answers to my health issues and have since delveloped a whole host of co-morbiditities too. I spend my time volunteering and supervising my two chaotic cats. I have taken this role to support others in their journeys, educate where I can, and to help provide space where people can feel heard and supported.
Members of EDS UK are welcome to join their regional closed members group on Facebook. Visit us here to join your regional group
Please note that Volunteer Area Coordinators may not get back to you immediately.
If you need to talk right now, whatever you’re going through, there are people you can talk to any time. You can:
call Samaritans on 116 123 (UK-wide)
text SHOUT to 85258 (UK-wide)
call C.A.L.L. on 0800 132 737 (Wales only)
These services are for anyone who’s struggling. They won’t judge you.
They’re free, they’re anonymous, and they’re always open.
Sylwch efallai na fydd Cydlynwyr Ardal Gwirfoddol yn cysylltu â chi ar unwaith.
Os oes angen i chi siarad ar hyn o bryd, beth bynnag rydych chi’n mynd drwyddo, mae yna bobl y gallwch chi siarad â nhw ar unrhyw adeg. Gallwch:
ffoniwch y Samariaid ar 116 123 (ledled y DU)
testun SIOP i 85258 (ledled y DU)
ffoniwch C.A.L.L. ar 0800 132 737 (Cymru yn unig)
Mae’r gwasanaethau hyn ar gyfer unrhyw un sy’n ei chael hi’n anodd. Ni fyddant yn eich barnu.
Maen nhw am ddim, maen nhw’n ddienw, ac maen nhw bob amser ar agor.
Date: 10th October 2026
Start: 2:00 pm
Finish: 4:00 pm
Venue: Purple Elephant Coffee Shop, Grace Church, Hill View Cres, Clase, Swansea SA6 7HN
Additional info: Swansea in-person support group meeting with Jeni. Fully accessible venue, disabled toilets and free refreshments available. All welcome!
Map: