Membership Levels

Membership to The Ehlers-Danlos Support UK is a lifetime membership which you can cancel at any time. If you choose to upgrade to Premier level, there is a minimal cost per year depending on whether you choose to receive the magazine digitally or in paper form delivered to your door, and if you live outside of the UK.

You can upgrade to a Premier Fragile Links membership at any time and this will run for 12 months from the date of payment. If you let a paid membership expire you will automatically be moved to the free EDS UK Membership option until you wish to upgrade again. The premier level membership helps us to continue to work on your behalf, providing support, advice, research and campaigning on behalf of all those in the UK.

Best value

Premier level - plus Fragile Links (digital)

£8
Membership expires after 1 year

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YOUR BEST VALUE £8 per year (or you can pay £1 a month on standing order)  - PLEASE DO SIGN UP TO THIS LEVEL AS IT HELPS US TO CONTINUE PROVIDING SERVICES TO YOU.

• Access to management videos on the website
• Priority access to the Nourished© programme
• Access to Benefits and Work guides - support for applying for PIP, ESA, UC
• Access to local support groups (UK patients and families only)
• Access to regional closed Facebook Support Group pages (UK patients and families only)
• A weekly Enewsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
• Priority and discounted tickets to EDS UK conferences and events
• An annual digital subscription to our bi-annual magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June and December 2026)
• Access to digital copies of previous editions online

Premier level - plus Fragile Links (UK delivery)

£13
Membership expires after 1 year

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FOR THOSE WHO PREFER A PAPER COPY OF A MAGAZINE POSTED TO YOUR DOOR: £13 per year (or you can pay £2 a month on standing order which includes an £11 donation)  - PLEASE DO SIGN UP TO THIS LEVEL AS IT HELPS US TO CONTINUE PROVIDING SERVICES TO YOU.

• Access to management videos on the website
• Priority access to the Nourished© programme
• Access to Benefits and Work guides - support for applying for PIP, ESA, UC
• Access to local support groups (UK patients and families only)
• Access to regional closed Facebook Support Group pages (UK patients and families only)
• A weekly Enewsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
• Priority and discounted tickets to EDS UK conferences and events
• An annual subscription to our bi-annual magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June and December 2026)
• Access to digital copies of previous editions online. Delivery to a United Kingdom postal address.

Premier level - plus Fragile Links (Eur & Ireland)

£18
Membership expires after 1 year

Select

• Access to management videos on the website
• Access to Benefits and Work guides - support for applying for PIP, ESA, UC
• Access to local support groups (UK patients and families only)
• Access to regional closed Facebook Support Group pages (UK patients and families only)
• A weekly Enewsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
• Priority and discounted tickets to EDS UK conferences and events
• An annual subscription to our bi-annual magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June and December 2026). Delivery to a Europe or Ireland address.
• Access to digital copies of previous editions online

Premier level - plus Fragile Links (rest of World)

£25
Membership expires after 1 year

Select

• Access to management videos on the website
• Access to local support groups (UK patients and families only)
• Access to regional closed Facebook Support Group pages (UK patients and families only)
• A weekly Enewsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
• Priority and discounted tickets to EDS UK conferences and events
• An annual subscription to bi-annual our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June and December 2026). Delivery to any worldwide address.
• Access to digital copies of previous editions online

EDS UK Basic Membership

Free
Membership for life

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• Access to local support groups (UK patients and families only)
• Access to regional closed Facebook Support Group pages (UK patients and families only)
• A weekly E-newsletter

You do not get access to:

• Access to management videos on the website
• Priority access to the Nourished© programme
• Priority and discounted tickets to EDS UK conferences and events
• An annual digital subscription to our bi-annual magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (December 25 and June 26)
• Access to digital copies of previous editions online with management articles

For just £8 a year (or £1 a month standing order) you can benefit from much more including  access to Benefits and Work guides - support for applying for PIP, ESA, UC - please do see the Membership options at the top of the page. Every paid membership helps us to provide information and resources for you, support groups and an advice line, and to campaign and advocate on your behalf. Click here to join now