Adviceline

Our free telephone and email Adviceline is available to everyone, including people with EDS or HSD, their families, friends, carers and healthcare professionals. The advice we can give is specific to EDS or HSD and we can help with questions on areas such as:

• Getting a diagnosis

• Advice on managing symptoms

• Understanding what EDS is

• Referral procedures for EDS specialists

• Access to ‘friendly specialists’

• Information on accessing benefit

Before contacting our Adviceline, we would encourage you to check our FAQ’s page as this may help you find the information you need quicker.

The Adviceline (0800 907 8518) is open 09:00 – 15:00 on Tuesdays and Fridays only.  Please only call during these hours. You can also email adviceline@ehlers-danlos.uk and we will aim to get back to you within 5 working days. Our main office number (0800 246 1391) should only be used for all other enquiries and any advice line messages left on the head office answerphone will not be responded to.

We are only able to provide advice about EDS or HSD so if you need an immediate response or are at risk of harm please contact 999, your GP or the Samaritans on 116 123 available 24/7. You can also text SHOUT to 85258 for 24/7 support.

The Adviceline is completely dependent on donations. Please consider donating to help as many people as possible.