Membership Levels

EDS UK Membership is free for everyone for life (needs renewing every two years). We also produce a members' magazine called Fragile Links which is circulated twice a year, containing management advice, charity news, life stories and more.

You can either purchase each issue at a time from our online shop or upgrade your membership to include a one year subscription.

EDS UK Membership

Free
Membership expires after 2 year
  • Access to management videos on the website
  • Access to a local support group (UK patients and families only)
  • Access to a regional closed Facebook Support Group page (UK patients and families only)
  • Every Tuesday afternoon we will send you our weekly newsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual subscription to our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June & December)
  • Access to digital copies of previous editions online

plus Fragile Links (UK delivery)

£8
Membership expires after 1 year
  • Access to management videos on the website
  • Access to a local support group (UK patients and families only)
  • Access to a regional closed Facebook Support Group page (UK patients and families only)
  • Every Tuesday afternoon we will send you our weekly newsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual subscription to our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June 24 & December 24)
  • Access to digital copies of previous editions online

plus Fragile Links (digital)

£5
Membership expires after 1 year
  • Access to management videos on the website
  • Access to a local support group (UK patients and families only)
  • Access to a regional closed Facebook Support Group page (UK patients and families only)
  • Every Tuesday afternoon we will send you our weekly newsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual digital subscription to our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June 22 & December 22)
  • Access to digital copies of previous editions online

plus Fragile Links (Eur & Ireland)

£13
Membership expires after 1 year
  • Access to management videos on the website
  • Access to a local support group (UK patients and families only)
  • Access to a regional closed Facebook Support Group page (UK patients and families only)
  • Every Tuesday afternoon we will send you our weekly newsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual subscription to our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June 24 & December 24). Delivery to a Europe or Ireland address.
  • Access to digital copies of previous editions online

plus Fragile Links (rest of World)

£18
Membership expires after 1 year
  • Access to management videos on the website
  • Access to a local support group (UK patients and families only)
  • Access to a regional closed Facebook Support Group page (UK patients and families only)
  • Every Tuesday afternoon we will send you our weekly newsletter containing charity updates, management advice, fundraising ideas and the latest developments related to the condition
  • Priority and discounted tickets to EDS UK conferences and events
  • An annual subscription to our magazine, Fragile Links Magazine. Containing articles on management advice written by expert medical professionals, charity news and patient stories. An annual subscription includes two editions (June 24 & December 24). Delivery to any worldwide address.
  • Access to digital copies of previous editions online