Webinar: Menopause and Ehlers-Danlos syndrome

A pdf showing top tips of how to support a friend or family member with EDS or HSD

A pdf showing top tips of how to support students with EDS or HSD

A pdf showing top tips for creating an EDS/HSD friendly workplace

A pdf showing top tips of how to support pupils with EDS or JHS

Imogen Roux is vocal coach specialising and hypermobility. In this session we will look at the scientific links between hypermobile Ehlers-Danlos syndrome (hEDS) and the nervous system. How are they connected through the voice and breath? We explore how techniques be used right now to improve our quality of life.

EDS UK was proud to host another interactive webinar with Dr. Jane Simmonds on Friday 19th January.

A prerecorded interview with Dr. Jane Simmonds about EDS in Children

Jane Simmonds offers advice on how to prevent deconditioning whilst being at home. This article was written just after the first COVID-19 lockdown.

The Away with pain website is dedicated to providing information and support to those living with chronic pain. It's a place where people can visit, find comfort and share their experiences if they so wish. Hopefully eliminating some of the fear, frustration, loneliness and isolation that can be felt when living and dealing with chronic pain on a daily basis.

In this webinar, Dr Johanna Theron discusses pain management options for EDS and HSD

EDS UK Webinar with pain specialist Dr Deepak Ravindran

Dr Johanna Theron from the Community Chronic Pain Service in Kent writes about pain in EDS and ways to manage it

Sarah Sinclair is managing editor of Cannabis Health and in this article she talks about the tole medical cannabis can play in the management of EDS

Fragile Links Winter 2024

EDS-UK where proud to host a live Q&A webinar on understanding and living with Postural Orthostatic Tachycardia Syndrome (POTS). The webinar featured Dr. Mark Belham, a consultant cardiologist at the Cambridge Heart clinic, Addenbrookes Hospital.

A webinar with Dr. Louise Lightfoot about school and a child with EDS

EDS UK was proud to host another live and interactive webinar with Dr. Mike Harrison on April 19th. He is a consultant in paediatric dentistry based at Evelina and Guys and St. Thomas’ Hospital. The webinar focused on how and why dental issues occur with connective tissue disorders and how you can manage them.

An webinar exploring the Buteyko breathing method and the benefits it may have for EDS and HSD patients

A webinar with EDS specialist in Orthotics and prosthetist, Nicci Leah Rogers. The webinar explores the benefits of orthotics and how they may help somebody with EDS or HSD.

An introduction into mindfulness and its benefits, followed by a 40 minute mindfulness session.

Marianna has experience working with children with hypermobility. In this webinar she will discuss the relationship between bladder issues and hypermobility. She will discuss current research, suggest management options and resources for parents.

A webinar on the Emotional Freedom Technique with Master EFT trainer Janet Broughton

Ideas and solutions to help you resolve back and pelvic pain

Ideas and solutions to help you resolve foot pain

A fascinating and insightful webinar by Dr Jessica Eccles on the relationship between hypermobility and neurodiversity

Rachel Fitz-Desorgher, Midwife, Author, and a leading baby and parenting expert talks about pregnancy and Ehlers-Danlos syndrome (EDS)

Why people with hEDS and HSD are prone to dislocations, and what to do if this happens to you.

The importance of movement and gradual exercise in the management of hEDS and HSD.

How physiotherapy can help you, what to expect, and working with your local services.

A look at the pros and cons of opting for orthopaedic surgery if you have hypermobile Ehlers-Danlos syndrome or a hypermobility spectrum disorder, and a discussion of the special measures that need to be taken.

An examination of the chronic pain and fatigue than can accompany hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders, and what can be done.

A guide to the chronic fatigue and sleep issues that are so common in EDS.

The British Pain Society advances the understanding and management of pain. Its publications provide expert guidance to patients and are supported by the latest evidence. You might find of particular help their popular booklet 'Understanding and Managing Long-Term Pain', details of how to request a free hard copy can be found by following the link.

A website to help people living with fibromyalgia and other chronic pain conditions using a self-management approach.

A toolkit of pain management skills to enable people living with persistent pain to become active self-managers.

Pain Concern is a charity providing support and information to people with pain and those who care for them. As well as raising awareness about pain and campaigning to improve the provision of pain management services, they run a helpline and offer a forum for members to share experiences.